Ulcerative colitis

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What is ulcerative colitis?

Ulcerative colitis is a type of inflammatory bowel disease that involves inflammation and ulceration in the lining of the large intestine (colon). It often involves a chronic cycle featuring episodes of worsening symptoms (including bloody diarrhea) and asymptomatic periods (i.e. remission).

Common symptoms reported by people with ulcerative colitis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with ulcerative colitis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Pentasa)
Type
Prescription Drug
How many have tried
48
Tried for
ulcerative colitis (46) diarrhea (2)
2 more
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
15
Tried for
ulcerative colitis (15) diarrhea (1)
Treatment name(s)

(Humira)
Type
Prescription Drug
How many have tried
14
Tried for
ulcerative colitis (14)
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
12
Tried for
ulcerative colitis (12)
Treatment name(s)

(Entyvio)
Type
Prescription Drug
How many have tried
12
Tried for
ulcerative colitis (12)
Treatment name(s)

(Canasa)
Type
Prescription Drug
How many have tried
11
Tried for
ulcerative colitis (11)
Treatment name(s)

(Pulmicort)
Type
Prescription Drug
How many have tried
10
Tried for
ulcerative colitis (10)
Treatment name(s)

(Remicade)
Type
Prescription Drug
How many have tried
10
Tried for
ulcerative colitis (10)
Treatment name(s)

(Ativan)
Type
Prescription Drug
How many have tried
9
Tried for
anxious mood (9)
Treatment name(s)

(Salazopyrin)
Type
Prescription Drug
How many have tried
9
Tried for
ulcerative colitis (9)

Data from patients with ulcerative colitis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with ulcerative colitis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Pentasa)
Perceived effectiveness
for ulcerative colitis (27 evaluations)
Side effects
diarrhea nausea 15 more
Total evaluations
29
Tried for
ulcerative colitis (46) diarrhea (2)
2 more
Treatment name(s)

(Deltasone)
Perceived effectiveness
for ulcerative colitis (12 evaluations)
Side effects
hunger mood swings 27 more
Total evaluations
12
Tried for
ulcerative colitis (15) diarrhea (1)
Treatment name(s)

(Humira)
Perceived effectiveness
for ulcerative colitis (11 evaluations)
Side effects
acne breakout dizziness 7 more
Total evaluations
11
Tried for
ulcerative colitis (14)
Treatment name(s)

(Imuran)
Perceived effectiveness
for ulcerative colitis (7 evaluations)
Side effects
nausea pain in lower back 16 more
Total evaluations
8
Tried for
ulcerative colitis (12)
Treatment name(s)

(Entyvio)
Perceived effectiveness
for ulcerative colitis (10 evaluations)
Side effects
nausea diarrhea 5 more
Total evaluations
10
Tried for
ulcerative colitis (12)
Treatment name(s)

(Canasa)
Perceived effectiveness
for ulcerative colitis (2 evaluations)
Side effects
abdominal cramps
Total evaluations
2
Tried for
ulcerative colitis (11)
Treatment name(s)

(Pulmicort)
Perceived effectiveness
for ulcerative colitis (6 evaluations)
Side effects
breathing difficulty decreased appetite 4 more
Total evaluations
6
Tried for
ulcerative colitis (10)
Treatment name(s)

(Remicade)
Perceived effectiveness
for ulcerative colitis (4 evaluations)
Side effects
acne arthritis pain 13 more
Total evaluations
4
Tried for
ulcerative colitis (10)
Treatment name(s)

(Ativan)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
decreased effectiveness over time rebound anxiety the following morning
Total evaluations
1
Tried for
anxious mood (9)
Treatment name(s)

(Salazopyrin)
Perceived effectiveness
for ulcerative colitis (5 evaluations)
Side effects
blood in stool dark colored urine 8 more
Total evaluations
6
Tried for
ulcerative colitis (9)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with ulcerative colitis, who reported starting treatments within the last 5 years.
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Who has ulcerative colitis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 38
20s 217
30s 484
40s 634
50s 618
60s 377
70+ 125
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 256
20-29 years 312
30-39 years 263
40-49 years 203
50-59 years 86
60-69 years 18
70+ years 6

Distribution of sex

Sex
Sex Proportion # of patients
Male 656
Female 1877

Types
Condition Types Proportion # of patients
Left-sided colitis 10
Pancolitis 4
Proctosigmoiditis 1
Ulcerative proctitis 5
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1475
Not Diagnosed 29

These charts show data from ulcerative colitis patients who have completed their condition history
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