Ulcerative colitis
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- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is ulcerative colitis?
Ulcerative colitis is a type of inflammatory bowel disease that involves inflammation and ulceration in the lining of the large intestine (colon). It often involves a chronic cycle featuring episodes of worsening symptoms (including bloody diarrhea) and asymptomatic periods (i.e. remission).
Common symptoms reported by people with ulcerative colitis
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with ulcerative colitis
Treatment name(s)
Type
How many have tried
Tried for
Data from patients with ulcerative colitis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with ulcerative colitis
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for ulcerative colitis (27 evaluations)
Total evaluations
29
Tried for
ulcerative colitis
(46)
diarrhea
(2)
2 more
Perceived effectiveness
for ulcerative colitis (12 evaluations)
Total evaluations
12
Tried for
ulcerative colitis
(15)
diarrhea
(1)
Perceived effectiveness
for ulcerative colitis (11 evaluations)
Total evaluations
11
Tried for
ulcerative colitis
(14)
Perceived effectiveness
for ulcerative colitis (7 evaluations)
Total evaluations
8
Tried for
ulcerative colitis
(12)
Perceived effectiveness
for ulcerative colitis (10 evaluations)
Total evaluations
10
Tried for
ulcerative colitis
(12)
Perceived effectiveness
for ulcerative colitis (2 evaluations)
Side effects
abdominal cramps
Total evaluations
2
Tried for
ulcerative colitis
(11)
Perceived effectiveness
for ulcerative colitis (6 evaluations)
Total evaluations
6
Tried for
ulcerative colitis
(10)
Perceived effectiveness
for ulcerative colitis (4 evaluations)
Total evaluations
4
Tried for
ulcerative colitis
(10)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
decreased effectiveness over time
rebound anxiety the following morning
Total evaluations
1
Tried for
anxious mood
(9)
Perceived effectiveness
for ulcerative colitis (5 evaluations)
Total evaluations
6
Tried for
ulcerative colitis
(9)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with ulcerative colitis, who reported starting treatments within the last 5 years.
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Who has ulcerative colitis on PatientsLikeMe?
- 2700 patients have this condition
- 45 new patients joined this month
- 1557 say ulcerative colitis is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 38 | |
| 20s | 217 | |
| 30s | 484 | |
| 40s | 634 | |
| 50s | 618 | |
| 60s | 377 | |
| 70+ | 125 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 256 | |
| 20-29 years | 312 | |
| 30-39 years | 263 | |
| 40-49 years | 203 | |
| 50-59 years | 86 | |
| 60-69 years | 18 | |
| 70+ years | 6 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 656 | |
| Female | 1877 |
| Condition Types | Proportion | # of patients |
|---|---|---|
| Left-sided colitis | 10 | |
| Pancolitis | 4 | |
| Proctosigmoiditis | 1 | |
| Ulcerative proctitis | 5 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 1475 | |
| Not Diagnosed | 29 |
These charts show data from ulcerative colitis patients who have completed their condition history
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