Progressive supranuclear palsy
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What is progressive supranuclear palsy?
Progressive supranuclear palsy is a rare neurodegenerative disorder characterized by gait and balance difficulties and loss of coordination of eye movements.
Common symptoms reported by people with progressive supranuclear palsy
Common symptoms
How bad it is
What people are taking for it
Common symptom
Eye movement difficulty
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Difficulty getting comfortable in bed
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Excessive daytime sleepiness (somnolence)
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Problems opening eyelids
How bad it is
What people are taking for it
Nothing reported yet
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with progressive supranuclear palsy
Treatment name(s)
Type
How many have tried
Tried for
Data from patients with progressive supranuclear palsy, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with progressive supranuclear palsy
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for progressive supranuclear palsy (5 evaluations)
Total evaluations
9
Tried for
progressive supranuclear palsy
(3)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood
(1)
Perceived effectiveness
for pain (2 evaluations)
Side effects
sleeping better
Total evaluations
3
Tried for
pain
(1)
Perceived effectiveness
for progressive supranuclear palsy (1 evaluation)
Side effects
Total evaluations
2
Tried for
progressive supranuclear palsy
(1)
Treatment name(s)
Prunes
Perceived effectiveness
for constipation (2 evaluations)
Side effects
Total evaluations
2
Tried for
constipation
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with progressive supranuclear palsy, who reported starting treatments within the last 5 years.
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Who has progressive supranuclear palsy on PatientsLikeMe?
- 287 patients have this condition
- 0 new patients joined this month
- 256 say PSP is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 0 | |
| 30s | 11 | |
| 40s | 4 | |
| 50s | 22 | |
| 60s | 55 | |
| 70+ | 113 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 1 | |
| 20-29 years | 0 | |
| 30-39 years | 4 | |
| 40-49 years | 8 | |
| 50-59 years | 20 | |
| 60-69 years | 31 | |
| 70+ years | 14 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 100 | |
| Female | 106 |
| Condition Types | Proportion | # of patients |
|---|---|---|
| Corticobasal degeneration (CBD) | 16 | |
| Progressive supranuclear palsy (PSP/Steele Richardson Olszewski Syndrome) | 130 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 86 | |
| Not Diagnosed | 20 |
These charts show data from PSP patients who have completed their condition history
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