Polycystic liver disease
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What is polycystic liver disease?
Polycystic Liver Disease is inherited either with liver cysts alone or with both liver and kidney cysts. The liver tissue becomes infused with cysts, resulting in a hardening of the liver texture.
Common symptoms reported by people with polycystic liver disease
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with polycystic liver disease
Treatment name(s)
Type
How many have tried
Tried for
Data from patients with polycystic liver disease, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with polycystic liver disease
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for depressed mood (3 evaluations)
Side effects
Total evaluations
3
Tried for
depressed mood
(1)
Perceived effectiveness
for pain (4 evaluations)
Side effects
Total evaluations
4
Tried for
pain
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with polycystic liver disease, who reported starting treatments within the last 5 years.
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Who has polycystic liver disease on PatientsLikeMe?
- 65 patients have this condition
- 3 new patients joined this month
- 39 say polycystic liver disease is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 2 | |
| 30s | 1 | |
| 40s | 14 | |
| 50s | 27 | |
| 60s | 8 | |
| 70+ | 7 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 4 | |
| 20-29 years | 1 | |
| 30-39 years | 4 | |
| 40-49 years | 4 | |
| 50-59 years | 3 | |
| 60-69 years | 2 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 5 | |
| Female | 58 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 29 | |
| Not Diagnosed | 0 |
These charts show data from polycystic liver disease patients who have completed their condition history
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