Parkinson's disease

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Ed explains in this video.

What is Parkinson's disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with Parkinson's disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
713
Tried for
Parkinson's disease (710) stiffness/spasticity (7)
4 more
Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
210
Tried for
Parkinson's disease (209) tremor(s) (3)
2 more
Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
196
Tried for
Parkinson's disease (191) jerky movements (6)
3 more
Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
168
Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
138
Tried for
Parkinson's disease (138) stiffness/spasticity (1)
1 more
Treatment name(s)

(Rytary XR)
Type
Prescription Drug
How many have tried
126
Tried for
Parkinson's disease (125) stiffness/spasticity (8)
2 more
Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
89
Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
75
Tried for
Parkinson's disease (75)
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
70
Tried for
Parkinson's disease (68) jerky movements (8)
3 more
Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
68

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Parkinson's disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's disease (656 evaluations)
Side effects
nausea jerky movements 145 more
Total evaluations
667
Tried for
Parkinson's disease (710) stiffness/spasticity (7)
4 more
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's disease (184 evaluations)
Side effects
headaches jerky movements 39 more
Total evaluations
188
Tried for
Parkinson's disease (209) tremor(s) (3)
2 more
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's disease (158 evaluations)
Side effects
dry mouth fatigue 54 more
Total evaluations
166
Tried for
Parkinson's disease (191) jerky movements (6)
3 more
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's disease (126 evaluations)
Side effects
nausea tiredness 53 more
Total evaluations
129
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's disease (112 evaluations)
Side effects
sleepiness drowsiness 53 more
Total evaluations
113
Tried for
Parkinson's disease (138) stiffness/spasticity (1)
1 more
Treatment name(s)

(Rytary XR)
Perceived effectiveness
for Parkinson's disease (156 evaluations)
Side effects
jerky movements nausea 55 more
Total evaluations
158
Tried for
Parkinson's disease (125) stiffness/spasticity (8)
2 more
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's disease (80 evaluations)
Side effects
nausea daytime sleepiness 34 more
Total evaluations
81
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's disease (48 evaluations)
Side effects
diarrhea nausea 18 more
Total evaluations
48
Tried for
Parkinson's disease (75)
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's disease (48 evaluations)
Side effects
Hospitalization balance problems 19 more
Total evaluations
49
Tried for
Parkinson's disease (68) jerky movements (8)
3 more
Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's disease (47 evaluations)
Side effects
nausea insomnia 20 more
Total evaluations
51
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
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Who has Parkinson's disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 5
20s 68
30s 262
40s 1054
50s 3551
60s 7504
70+ 8589
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 70
20-29 years 245
30-39 years 833
40-49 years 1859
50-59 years 2664
60-69 years 1952
70+ years 590

Distribution of sex

Sex
Sex Proportion # of patients
Male 11065
Female 10308

Types
Condition Types Proportion # of patients
Drug-induced parkinsonism 192
Parkinsonism of unknown cause 3577
Parkinson's disease 12650
Parkinson's disease of inherited (genetic) origin 1400
Vascular parkinsonism 93
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 9504
Not Diagnosed 312

These charts show data from Parkinson's disease patients who have completed their condition history
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