Migraine

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is migraine?

Migraine is a neural condition characterized by recurrent headache and may be accompanied by nausea, noise sensitivity, and photophobia, sometimes preceded by sensory disturbances (aura).  Triggers of migraine episodes vary widely and may include allergic reactions, diet, alcohol, and bright lights.

Common symptoms reported by people with migraine

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with migraine

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Topamax)
Type
Prescription Drug
How many have tried
152
Tried for
migraine headaches (139) migraine (14)
5 more
Treatment name(s)

(Imitrex)
Type
Prescription Drug
How many have tried
145
Tried for
migraine (113) migraine headaches (56)
3 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
84
Tried for
pain (63) migraine (17)
3 more
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
73
Tried for
migraine headaches (26) pain (26)
3 more
Treatment name(s)

(Ibuprofen Prescription)
Type
Over the Counter Drug
How many have tried
71
Tried for
migraine (52) pain (38)
1 more
Treatment name(s)

(Naproxen Prescription)
Type
Over the Counter Drug
How many have tried
69
Tried for
migraine (54) pain (19)
2 more
Treatment name(s)

(Voltaren Gel)
Type
Prescription Drug
How many have tried
68
Tried for
migraine (43) pain (35)
1 more
Treatment name(s)

(Maxalt)
Type
Prescription Drug
How many have tried
66
Tried for
migraine (51) migraine headaches (26)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
61
Tried for
pain (54) migraine headaches (7)
1 more
Treatment name(s)

(Inderal)
Type
Prescription Drug
How many have tried
60
Tried for
migraine headaches (54) anxious mood (9)
1 more

Data from patients with migraine, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with migraine

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Topamax)
Perceived effectiveness
for migraine headaches (102 evaluations)
Side effects
decreased appetite weight loss 99 more
Total evaluations
113
Tried for
migraine headaches (139) migraine (14)
5 more
Treatment name(s)

(Imitrex)
Perceived effectiveness
for migraine (56 evaluations)
Side effects
fatigue drowsiness 44 more
Total evaluations
74
Tried for
migraine (113) migraine headaches (56)
3 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (41 evaluations)
Side effects
weight gain drowsiness 30 more
Total evaluations
50
Tried for
pain (63) migraine (17)
3 more
Treatment name(s)

(Elavil)
Perceived effectiveness
for migraine headaches (20 evaluations)
Side effects
drowsiness dry mouth 24 more
Total evaluations
63
Tried for
migraine headaches (26) pain (26)
3 more
Treatment name(s)

(Ibuprofen Prescription)
Perceived effectiveness
for migraine (26 evaluations)
Side effects
chronic kidney disease elevated liver enzymes 5 more
Total evaluations
40
Tried for
migraine (52) pain (38)
1 more
Treatment name(s)

(Naproxen Prescription)
Perceived effectiveness
for migraine (18 evaluations)
Side effects
stomach pain allergic reaction 7 more
Total evaluations
31
Tried for
migraine (54) pain (19)
2 more
Treatment name(s)

(Voltaren Gel)
Perceived effectiveness
for migraine (28 evaluations)
Side effects
nausea stomach pain 16 more
Total evaluations
45
Tried for
migraine (43) pain (35)
1 more
Treatment name(s)

(Maxalt)
Perceived effectiveness
for migraine (25 evaluations)
Side effects
nausea dizziness 18 more
Total evaluations
37
Tried for
migraine (51) migraine headaches (26)
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (28 evaluations)
Side effects
nausea sleepiness 10 more
Total evaluations
32
Tried for
pain (54) migraine headaches (7)
1 more
Treatment name(s)

(Inderal)
Perceived effectiveness
for migraine headaches (32 evaluations)
Side effects
dizziness anxious mood 23 more
Total evaluations
39
Tried for
migraine headaches (54) anxious mood (9)
1 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with migraine, who reported starting treatments within the last 5 years.
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Who has migraine on PatientsLikeMe?


Age
Age Proportion # of patients
<20 42
20s 791
30s 2197
40s 3408
50s 2825
60s 1228
70+ 201
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 3130
20-29 years 1255
30-39 years 692
40-49 years 343
50-59 years 79
60-69 years 11
70+ years 3

Distribution of sex

Sex
Sex Proportion # of patients
Male 1094
Female 9636

Types
Condition Types Proportion # of patients
Chronic migraine (>15 migraines/month) 101
Complex confusional migraine 17
Complex migraine 38
Hemiplegic migraine 18
Menstrual migraine 34
Migraine with brainstem aura (basilar migraine) 39
Mixed tension migraine 50
Ocular migraine 29
Silent migraine 17
Vestibular migraine 7
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6538
Not Diagnosed 418

These charts show data from migraine patients who have completed their condition history
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